DNA testing service 23andMe filed for bankruptcy protection on March 16, sparking concerns about what could happen to the genetic data of the company’s 15 million customers.
23andMe has said that “data privacy will be an important consideration in any potential transaction.” However, security experts and lawmakers have cautioned customers to take action to protect their data, considering that a new owner could change how the company’s data is managed and used.
If you’re one of the 15 million people who shared their DNA with 23andMe, we’ve outlined the steps you can take to protect yourself. While you can’t delete all your 23andMe data, there are some things you can control.
It’s worth noting that the data removal process may take some time, as users have reported that 23andMe’s website is functioning slower than usual, likely due to people flocking to the site to delete their data.
How to delete your 23andMe data
To delete your data from 23andMe, you need to log in to your account.
Firstly, navigate to the Settings section of your profile. Then, scroll down to the selection labeled 23andMe Data. From there, click the View option and then scroll to the Delete Data section. Next, select the Permanently Delete Data button.
You will then receive an email from 23andMe with a link that will allow you to confirm your deletion request.
You can choose to download a copy of your data before deleting it.
There is an important caveat, as 23andMe’s privacy policy states that the company and its labs “will retain your Genetic Information, date of birth, and sex as required for compliance with applicable legal obligations.”
The policy continues: “23andMe will also retain limited information related to your account and data deletion request, including but not limited to, your email address, account deletion request identifier, communications related to inquiries or complaints and legal agreements for a limited period of time as required by law, contractual obligations, and/or as necessary for the establishment, exercise or defense of legal claims and for audit and compliance purposes.”
This essentially means that 23andMe may keep some of your information for an unspecified amount of time.
How to destroy your 23andMe test sample and revoke permission for your data to be used for research
If you previously opted to have your saliva sample and DNA stored by 23andMe, you change this setting.
You can revoke your permission by going into your 23andMe account settings page and then navigating to Preferences.
In addition, if you previously agreed to 23andMe and third-party researchers using your genetic data and sample for research, you can withdraw consent from the Research and Product Consents section in your account settings.
While you can reverse that consent, there’s no way for you to delete that information.
Check in with your family members
Once you have requested the deletion of your data, it’s important to check in with your family members and encourage them to do the same because it’s not just their DNA that’s at risk of sale, it also affects people they are related to.
And while you’re at it, it’s worth checking in with your friends to ensure that all of your loved ones are taking steps to protect their data.
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